Wednesday, September 24, 2008
We had a team meeting today with all of Jayme's doctors and the transplant team. It was basically to discuss where Jayme is at now and where she needs to be. It was actually very positive. The hepatologist actually told her that if she were to put forth the effort to get stronger, watch her diet and take her meds she could live for a while with a realtively good quality of life without a new liver. He said that even if she got on the list today that she wouldn't be anywhere near the top. Liver patients are categorized into 3 categories; A, B and C, with C being the worst. Jayme isn't even a C, she's a B. As sick as she is, she isn't as bad as she could be. What is making her so sick is the fact that she is allowing herself to get sicker. I think we are all frustrated that Jayme doesn't seem to be trying harder to fight. The doctors have been asking her to sit up for meals, use the commode instead of a bed pan, and sit in a chair for a little while and she hasn't been very willing to do that. However, the physical therapist got her to walk 150 feet today with a walker, which shows that she has the ability to do more than she is letting on. It was basically a wake up call for her. As it is, the doctors don't think that she is capable or willing to take care of herself post-transplant. It will be a lot of work, but she has to get moving if she is going to get better. She will need a lot of encouragement and support, but this is basically it. She has the power to basically chose which way her life will go.
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