Jayme is back in the hospital. She came home from the nursing home a week ago today. She was supposed to be there longer, but she hated it there and we weren't going to make her stay there when she hated it so much. Her roommate was horrible, there was no phone or TV (they said they were in the process of switching phone service and kept telling us that her phone would be installed anytime and her roommate wouldn't let her watch TV). She only got physical therapy once in the 5 days that she was there. Anyways, she has been deteriorating pretty rapidly. She isn't getting out of bed at all, she is wearing diapers now and eating all 3 meals in bed. Mike and I have tried our best to encourage her to get out of bed, but she is in pain and weak. She does have a physical therapist coming in 2-3 times a week, but so far all they have been able to do is work on standing up.
The testing is all complete for her to get on the list. However, those tests found a hole in her heart between the atriums. If she were to undergo the transplant surgery with this hole it could cause complications, including stroke. They want to go in and do an ultrasound through her esophagus, but before they can do that, they had to make sure she didn't have the verices in there. So they did a scope on Friday and banded the verices. This procedure knocked her out, though. Honestly, with her health as it is now, I don't see how she can make it through a cardiac procedure, even if they do go in with a catheter like they hope to. The doctors agree and are hoping that as she stays in the hospital she will get stronger and they will be able to proceed. Really, everything from here out depends on her getting stronger. It's frustrating though, because when the doctors tell her this, she gets defensive and says she doesn't like threats. I don't know if she understands that these aren't threats. Right now she wouldn't live through the transplant even if they had a liver for her.
Anyways, she always appreciates calls in the hospital, so I will send out an email as soon as I get her phone #.
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